Another joins our ranks

9 11 2008

I wasn’t sure what to write about for D-blog day, but then I heard from my dad that there is another brand new diabetic in the world.

Her name is Katie (I’ll have to check on the spelling) and she’s my sister’s ice skating coach.  All I know so far is that her blood sugar was over 600 and went to the emergency room and had to stay overnight.

I imagine she will be contacting me soon and I will definitely be pointing her to the awesome Diabetes OC!  I know you all have helped me so much through the years, and I can’t wait to pass on all the wonderful wisdom.





Other D words

6 11 2008

Detroit

After being bounced around as to what process to follow, I finally called our disability services number regarding the strike situation.  The lady was really nice and took down all the information that I wanted.  I got a claim number and squeezed in an appointment with my endo at the last minute.

My endo does not seem worried about getting the accommodations that I request.  And he didn’t seem to agree with me that being in Detroit would be bad.  From his perspective, I handle everything pretty well and don’t really need to be close to them.  From my perspective, this makes me nervous.  Although, my endo did mention the name of an endo he knows in Detroit that’s pretty good, so at least I would have that.

I’m really scared about the whole situation and I hope it gets resolved to my satisfaction.  Things are in motion, so all I can do now is wait.

Disappointment

While I was at my endo’s office for the strike stuff, they also did an A1c.  I wasn’t really due for one, but I was curious since I’ve been on the Dexcom for a few months now.  It came back a disappointing 6.1%.  Now, I know that is still a great number, but it broke my sub-6 streak.  My endo thinks that this is a “better” A1c because with Charlie, I have fewer lows.  So my overall control is better (less swings), but it results in a slightly higher A1c.  I know I should be happy, but after a 5.5 just 2 months ago, I still feel like a failure.

Depression

There are a lot of things going on in my world right now (as somewhat indicated by the above 2 sections) and it’s getting really hard to manage.  Too much stuff, not enough support.  Too many unknowns and no good solutions.

My mom had/has depression, and diabetics are more likely to have depression, so I’ve got 2 things going against me.  I refuse to take medication, and I already see a therapist, so I’m not sure what else I can do to get out of this funk.  How do I, as a perfectionist, let things go and allow it to be okay?





Crazy weekend

3 11 2008

A couple big things happened in the past few days.  And rather than write about it, I decided to talk about it.  Enjoy my first vlog!


Click to watch the video. Big thanks to my husband for being my cameraman!

Closeup pic:
tattoo





IV-3000 SUCKS!

2 11 2008

I am having a pretty good time with the Dexcom sensors, but I can only get 7 days out of them before the adhesive peels off and I have to get rid of it.  I was looking for a way to increase the life of my sensors, so I bought some IV-3000.

I figured that if I put the IV-3000 down first (cutting a hole in it for the needle of course), then that would stick to my skin, then the sensor would stick to the IV-3000 and it wouldn’t peel off.  We had our first trial run today and it sucks monkey balls.

Not long after I put the IV-3000 down, I already saw it peeling off near the edges.  Then I took a shower and all hell broke loose.  The whole sides were coming off and I had to stick it down with some heavy duty medical tape (which I loathe to use because it’s really stiff) so I didn’t lose the sensor.

What went wrong?!?!?  I read all the instructions and I couldn’t really tell if it was something I did.  Am I not supposed to use IV Prep wipes in conjuction with the IV-3000?  Am I not supposed to get it soapy?  It says it’s waterproof, but that does not seem to be the case.  I thought this IV-3000 was the best adhesive money could buy, and now I feel duped.  What a waste of $50.





Diabetes terminology

27 10 2008

I am thinking of getting a medical tattoo, and I am wondering what the best text would be.  I am hesitant to put “type 1 diabetes” because I fear that they will rename it in the future (see: “juvenile diabetes”).  “Insulin-dependent diabetes” is more accurate, but longer.  “IDDM” is shorter, but more cryptic.  What do you think?





The nachos will not defeat me!

23 10 2008

I wish I could show you Charlie’s graph from last night.  It absolutely kicked ass!  I had these nachos with chicken for dinner and my blood sugar was AWESOME!!!

  • 81g carbs
  • 57g fat
  • combination bolus – 50% upfront, 50% over 2 hrs 30 min
  • starting BG: 70
  • peak BG:  118 or so (according to Charlie, actual number probably closer to 125)
  • bedtime BG:  90 or so (again, according to Charlie)

WOOOOO!!!

Small note:  I did some light exercise in the evening and ended up cancelling about .8 units of the extended portion to counteract that.





Diabetic, not disabled

22 10 2008

I work for a fairly large company, which has a union (I’m not a part of it).  The union’s contract is going to be up in April and there are very strong indicators that they are going to strike.  To prepare for this, they are training non-union people to cover the union jobs during the strike.  My strike assignment location is in Detroit.  In case you didn’t know, I live in St. Louis.  This is a problem.

I’m not sure what to do about it.  There are forms to get a medical waiver, but the items listed on the form don’t really apply to me.  Things like lifting, stooping, walking, standing, etc.  I can do all of those things.  (I’m assuming this form is for people w/ bum hips, neck problems, etc)  There’s nothing physically wrong with me.  And overall, I am not opposed to performing work during the strike.

However, I do know that being forced to work in Detroit is going to cause serious problems.  If something goes wrong, I’m 8+ hours away from my husband, my family, and my excellent medical team.  I’d be forced to go to an ER where my blood sugar will not be a priority.

Not to mention, that during the first few weeks, there is a mandatory 72-hour work week.  Yup, 12 hours a day, 6 days a week.  Then after that, it gets lowered to 60 hours a week (10 hours a day, 6 days a week).  I will guarantee you that will fuck up my blood sugar.  Will I get lunch breaks?  Will I get dinner breaks?  Will I be able to test my blood sugar whenever I want?  Will I be able to get snacks when I need them?

Clearly, the assignment in Detroit will negatively affect me, but what can I do about it?  My A1c is 5.5, so from a medical perspective, I’m normal!  I shouldn’t need accommodating!

I know the Americans with Disabilities Act has been improved to better protect people with “invisible” diseases, but I’m not sure what other points I need to make.  This is a very tricky line between “disabled” and “normal.”





Questions about Animas pump

6 10 2008

I know at some point, I’ll need to replace Lucy.  I was poking around Animas’ website, and they have a GREAT demo of their pump.  I played with it a bit, trying to see how the things I do with Lucy would translate to the Animas.

One thing I noticed overall, is that there are WAY fewer customization options.  For example, when I want to do a meal bolus based on carbs, I can customize the scrolling amount (1, 2, 3, 4, 5, 10, 15).  However, I didn’t see that option on the Animas.  There are a lot of other things I didn’t see, which kind of surprised me.

The major thing I found, though, is with the meal bolus itself.  I entered my carbs, entered my blood sugar, and it gave me a suggested amount (based on carbs, BS, IOB, etc).  HOWEVER, the amount to deliver defaults to ZERO, NOT the amount suggested.  In fact, the default button is the “Go” button.  If one were just to hit “OK” through all the prompts after entering your info, you would in fact deliver NO insulin for your meal.  This seems like a bad idea.  I would hate to take the time for every single bolus to scroll up to the suggested amount.  Is there a setting somewhere to change that?  I couldn’t seem to find it.

Relatedly, after you hit Go to deliver, it shows that your insulin is delivering and you hit any button to cancel.  Are you just supposed to sit there and wait for your bolus to finish delivering before touching anything else with your pump?  What happens if you accidentally press buttons?  All this seems like a sure recipe for accidental highs.

I am also frustrated with the interface for changing inuslin/carb ratios, correction factor, etc.  Each segment has its own screen, so it’s hard to see the big picture.

Anyway, I’m sure people who use the Animas all the time have a better idea of how to use their pump.  But for now, it looks like I’m sticking with my Cozmo.





This is why I don’t get any sleep

2 10 2008

3:45am

*beeeeeeeeep*

Charlie: You are above 140.  You should correct.
Meter: 157.
Me: Yes, I should correct.  *fiddles with pump*

7:15am

*beeeeeeeeep*

Charlie: You are above 140.  You should correct.
Meter: 110.
Me: STFU, Charlie.  *goes back to sleep*





But…!

29 09 2008

My lunch post-prandial is typically the highest time of the day.  I have done everything I can think of to lower this number.

  • start eating about 20 minutes after I bolus
  • I do a 2-hour super bolus to get some extra insulin in my system early
  • count carbs very carefully, by both checking nutrition labels and weighing my foods
  • washed my hands before testing to ensure an accurate reading (making sure there’s no leftover lunch on my hands!)

I seem to have done everything right.  And yet, I am still too high.  Guess it’s time to up that I/C ratio.